Feeds:
Posts
Comments

Posts Tagged ‘me’

Some of you may have noticed that I’ve not posted anything for a while now. I’ve decided to take a little break from blogging.

I’m not sure how long my break will be but I promise I will be back at some point.

We have alot of different “stuff’ happening in the MumtoJ house at the moment. We are still struggling to sort out and deal with Hubby’s back injury, sorry but NHS you are very slow. For the government that wants to get people into work and off of benefits, here you have a man who has been unable to work for 2 years now due to his back injury but is desperate to get his back fixed (as best as it’s can be) and get back to work…………….(and a wife who desperately wants to get him back to work and oput from under her feet, I love him but his boredom is driving me mad). Despite doing everything we can, he is still waiting to be seen by a specialist and (hopefully) fixed. His back injury has also has other effects on family life because obviously he can’t play with our son in the same way that he used to 2 years ago.  J is a very active child and has struggled to understand that Dad can’t play on the trampoline and he can’t climb on Dad etc etc and so that has meant I have had to try to take his place and J has had to adjust his play. J has ASD, adjusting his play has not been easy for him.

We have also moved house and have issues with heating etc, which hasn’t been much fun over the cold period that we’ve been having. As well as moving house J has moved school. He’s now going to a small village school AND he LIKES it…………………HE ACTUALLY LIKES IT!!!! Obviously he’s had some changes to cope with and he’s surprised us by coping remarkably well, so much better than we ever thought he would. We’ve seen a huge change in J since starting his new school, he’s much calmer before and after school, he’s talking about what he’s done at school, he’s telling us how he’s played with C or S or J at playtime, he’s eating his lunch and getting him dressed and ready for school isn’t such a big battle. All of which backs up our claim that school was causing his anxiety driven behaviour. So changing school has so far been a brilliant change and is working well for all of us.

We’ve also had Christmas to deal with, ok I know everyone had Christmas to deal with but ASD parents will understand when I say URGH!

I’ve also had some health issues myself to deal with, some of which are still ongoing but I’m not going to get into right now.

And then there’s been the whole issue of the future. Do we return to Australia? We want to but if Hubby’s back doesn’t get fixed is returning to Australia still an option that we should pursue. J has told some of the children in his class that he IS going back to Australia and we are very aware that there is lots that he misses. The education and Healthcare system works much better for J in Australia, so far it has been pretty crap here in the UK. We are still struggling to get a UK diagnosis, so far tests have shown he has difficulties but he scored one point less than needed on one test for an Autistic Spectrum Disorder diagnosis……….Guess Australia supported his needs too well or maybe he lost a little ASD on the flight to the UK. Anyway without that all important UK diagnosis he gets no help or support. So Australia would be and is so much better for J. There’s also the added bonus of an outdoor lifestyle, the weather makes that so much more possible. With the cold weather we are both constantly ill and stuck indoors. That said if Hubby can’t get his back fixed he won’t be able to return to the job that he has done all of his working life and so the question How do we support ourselves financially arises. I’d be happy to return to work but what does Hubby do?

We’ve got lots of other minor “stuff” going on in the background too. So as I said at the start of the post I’m taking a break from blogging so that we can try to deal with some of the things going on in our lives at the minute.

See you soon

Thanks for sticking with me, I’ll hopefully be back soon.

Read Full Post »

………………………. Yep most nights I enjoy a little nanna nap on the sofa before I eventually drag myself off to bed. :)

Read Full Post »

……………….Coffee anyone?

Read Full Post »

*Sigh*………Oh Brisbane I miss you :’(

Read Full Post »

As my heart swells with pride, happiness and love I can’t think of a better day to share this with you…………

J says I love you everyday, it’s part of his routine at bedtime and when on the rare occasion that I manage to escape go out, (usually to the supermarket), on my own, but it’s rarely said with any feeling behind it. I know that J loves me, he doesn’t have to say it because the little things he does everyday show me ………………. but this little note along accompanied by a hug *sigh* ……………..words can say a million things. xx

Read Full Post »

Can you guess what my favourite colour is?

……………………………………….

Read Full Post »

Yesterday I was filled with hope……………… Hope that things couldn’t get any worse right? I mean, we’ve had a pretty tough 18 months but the last 6 months things have gone from bad to worse.

We were forced to come back to the UK, there was nothing else we could do (although looking back now I kinda wish we’d pitched a tent in a friend’s backyard and stuck it out n Oz!). Relationships have changed with family and friends, not just because we’d been away for almost 2 years but also because some don’t know and can’t “deal” with J’s behaviour and I just can’t be bothered to deal with them. That might sound harsh but I’m being honest, we’ve got alot going on at the moment which has and is causing alot of stress and I don’t have the energy to deal with those people. We have housing issues which I won’t get into right now but they are causing us alot of stress right now. We’ve had various tests done regarding our recurrent miscarriages and have been told that we may be referred to a specialist in London. Hubby is still seeing specialists regarding his back and I don’t think I could explain how desperate he is to get it fixed and to get back to work. I’m seeing a surgeon this month due to my Carpal Tunnel. We’re still waiting to see the Peadiatrician in order to get J’s all important UK diagnosis, cause obviously all the specialists he saw in Oz didn’t know what they were talking about and we’ve just wasted.

However the biggest cause of stress this year has been school! Ok so J has always had school issues and I’m pretty sure he’ll always have issues with school but this year (and he’s only been there for 4 months!) has made last years school related issues look not so bad! He’s not wanted to go, (I know nothing new there right?), he’s become so anxious about school that he worried himself sick and so had to have the last day of last term off because he simply couldn’t cope! He’s both expressed his anxieties with negative (and sometimes violent) behaviour and has completely shutdown. It takes almost 2 hrs each and every school night to convince him to get into bed due to his anxieties about school the next morning. The school really doesn’t understand Autism and in all fairness we knew this when we chose it but they did seem like they wanted to help and said all the right things etc……… ofcourse not much of those things have happened *sigh*  His current teacher really doesn’t understand Autism or J, she and a TA have attended a course about Autism but neither seem to have gotten much out of it, they say they never see any ASD or anxiety behaviours at school, so obviously they don’t see him flapping, constantly bouncing,  the literal thinking, the chewing of gaping holes in his mouth, the dirty issues he has or the lost look in his eyes. And his TA has even said to me “To be honest I don’t treat him any different, I don’t make any allowances, I don’t see the point!”……… yep those were her actual words!!!

But yesterday we met what will be J’s teacher from September. It was awful, she left us feeling that not only does she not believe in ASD but she also doesn’t want to! Some of her comments included “All parents find it hard the first time round” (she actually said this one twice) and ofcourse the comment that all parents hate “All children do that, it’s normal for children his age!” She actually made his current teacher look like she understood and was supportive!! It was so bad that I wanted to scream when we left and very nearly cried. So now we’re stuck, we can’t simply change school due to our housing situation (long story) but we have serious concerns about sending him back to his current school in September with that teacher! :(

Just gotta hope we can sort things out over the Summer holidays I guess………..and if we can’t, who knows what we’re going to do :(

 

Read Full Post »

So many possibilities for today’s photo………………… Firstly there’s the collection of toys sprawled all over the floor in just about every room in the house…………….Yes every room!  Or maybe I could have showed off our gardening skills by photographing the floor outside, (the strawberries are looking yum!). Or maybe I could have posted a photo of us enjoying floortime play with J’s Mario figures…………………

In the end I thought I’d keep it simple……………………

Read Full Post »

FUN!

Read Full Post »

Chantelle over at Fat Mum Slim has set a challenge for July. (You can read more about it by clicking the link and maybe join in the fun too)

Basically the challenge is to post a photo a day, sounds like fun so I thought I’d give it a go.

So today’s challenge was to post a self portrait. I had a little difficulty with this one, I don’t like to have my picture taken and I’m really not good at art, so was pretty stuck. Not knowing what to post for day one of the challenge was not a good start! After putting my thinking cap on I decided to cheat a little……………………………..

Ok so I know it’s cheating a little but I’ve taken a photo of a picture that J drew of me. He’s summed up who I am in one word…………….Mum. As I took this photo of me, I’m classing that as a self-portrait ;)   …………………… Oh and yes I’m loving that I finally have long, skinny legs LOL :)

Read Full Post »

Older Posts »

Follow

Get every new post delivered to your Inbox.

Join 568 other followers

%d bloggers like this: