Posted in children, Christmas, fun, parenting, review, toys, tagged children, Christmas, Fun, parenting, reviews on December 14, 2012 |
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I recently received a Reindeer costume to review from Joke.co.uk.
J was very excited when it arrived and quickly tore open the packaging and then proceeded to wear the Reindeer costume for 2 days straight!
The costume is made from very soft material so for a child with sensory needs it was fantastic. J found it very easy to get in and out of, he did however keep misplacing the reindeer head which wasn’t attached to the main part of the costume and was more of a hood/hat. At just £8.49 this costumes is great value for money. It’s sure to get lots of use in our house, in fact J loves it so much that he wants to wear it to his school Christmas party!
There’s a huge range of children’s costumes available to choose from on their site, everything from clowns and superheroes to themes such as Christmas and Halloween. There’s also a range of adult fancy dress costumes available to choose from, which is very handy at the moment with party season upon us, so why not take a look, there’s something for everyone.
Disclaimer: No monetary compensation was given for this review. I did, however, receive a reindeer costume to trial and review. All opinions are my own or of my family, where applicable.
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Posted in children, coping with change, health, life, parenting, photo a day November, pictures, school, sleep, time, tagged #photoadayNovember, Asperger's Syndrome, Family, health, life, parenting, photography, sleep, special needs on November 5, 2012 |
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Hands Up all those parents that are NOT fans of daylight saving…………..*frantically waves both hands in the air*
Here’s why I’m not a fan ……………… 5am! J has been having night terrors and waking even more than usual through the night for the past 2 months. Strangely they started just after the summer holidays ……………right at the start of the new school year…………..coincidence? maybe or maybe it’s school that’s causing them. Whatever the reason he’s been up crying, shouting, hitting out, trying to pull something off him, saying “get off” “I don’t like it” and a whole host of random words that we can’t even begin to paste together. He doesn’t always wake up completely and actually often looks like he’s “in the nightmare” when I go in to him. We try to calm him down and settle him back off to sleep but a few times he’s been so involved in the nightmare/terror that we’ve had to wake him before settling him.
Despite the night terrors we’ve managed to get J into a routine wake up time each morning. Each and every morning he’s been getting up between 6am and 6.30am, which as alot of parents will agree is great and almost feels like a lie in. However, daylight saving happened! Last week we put the clocks back an hour and so J put his morning wake up call back an hour too. *sigh* For the last week J has been getting up between 5am and 5.30am. Combined with the night terrors and the chesty cold I have at the moment it all means I’m not getting a great deal of sleep.
So anyway back to topic #FMSphotoaday challenge. I took this at 5 o’Clock this morning, it was dark, cold and I was very tired………………
(Not the best photo, I know but hey I was tired!) LOL
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Does your child constantly ask WHY ARE THE GROWN UPS IN CHARGE?
Do they ask you questions such as WHERE DOES THE WIND COME FROM? or HOW FAR AWAY IS SPACE?
Do they ask you questions that you just don’t know how to answer?
Yep you know they do right? Those 3 that you’ve just read are ones that J has asked and it’s not always convenient to google an answer.
Big Questions From Little People is a book that answers some of these questions. There’s over 100 real questions from children aged 5 – 12 that have been answered by some of the best loved and most knowledgable experts such as Sir David Attenborough and Bear Grylls.
Ok so it may not have all of the answers to those
difficult interesting questions that children have a knack of asking but it’s pretty good. It’s a fab book for children (and adults) of all children and I can see it becoming one of our favourites taking up it’s place on our favourite shelf.
Another great thing about this book is that by buying it you will not only have some of those important answers but you will also be helping the NSPCC. The NSPCC is the UK’s leading children’s charity specialising in child protection. Over half of the advance and royalties from sales of Big Questions From Little People will go to the charity to help fund the NSPCC’s projects and services across the UK and Channel Islands.
The book has a RRP of 12.99 and to be honest is worth every penny.
You can find more information about the book here and take at look at the books facebook and twitter pages here and here
Disclosure: I received a complimentary review copy of Big Questions From Little People all opinions expressed are purely my own.
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Posted in anxiety, Asperger's Syndrome, Autism, behaviour, children, emotions, exercise, family, life, parenting, school, special needs, special occasions, sport, struggles, tagged Asperger's Syndrome, Autism, children, Family, life, parenting, school, special needs, special occasions, sports day on September 21, 2012 |
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Am I relieved or sad? It’s a question I’m asking myself today.
Today was supposed to be J’s sports day, his school have decided to hold it in September rather than next Summer?!?!
Anyway due to the rain it’s been cancelled but I’m not sure if I’m sad or relieved. Last year at J’s sports day/carnival he struggled with most of the events but the school had a few children who like J had additional needs and at the end of the day they put all of these children in their own running race to give them a fair chance at winning a ribbon. J came joint third and was very proud of himself. Had he been racing against the other children in his class that didn’t have any additional needs this probably wouldn’t have happened. J loves running and jumping, in fact he has great difficulty staying still, however the only time he is ever able to run fast is when he’s trying to escape. This presents 2 problems, the first being that he would struggle to keep up with the other children and the second being, J does not like to lose.
This year J tells us that he is to compete in the 50m hurdles and a relay race. So I’m not sure if I’m relieved or sad that it’s been cancelled. Relieved because if he doesn’t come 1st, 2nd or 3rd, I don’t know how he will react. I know he’ll be upset, 1st, 2nd and 3rd place children will receive a gold, silver or bronze award and I know he’d be gutted if he didn’t receive one of those. But I’m sad because we won’t get to cheer him on, we won’t be able to get it all over and done with and we won’t get to celebrate him doing his best (I have our own certificate all ready to print, just in case he doesn’t get an award/certificate).
I know it’s great to celebrate our children winning but what about all of those other children? The children whom despite trying their absolute best they just can’t keep up with the rest of the children, the ones that never win the gold silver or bronze. I wonder how they feel when their efforts don’t get rewarded and how much of a bashing their confidence takes. Why can’t schools celebrate the effort of all the children, even a small gesture such as a certificate congratulating them on their efforts would be appreciated.
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Posted in parenting, health, children, support, anxiety, challenging behaviour, family, school, life, Asperger's Syndrome, Autism, feelings, behaviour, special needs, Sensory, emotions, struggles, tagged Family, challenging behaviour, parenting, school, children, Asperger's Syndrome, Autism, life, Feelings, special needs, Sensory needs, sensory on September 19, 2012 |
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I attended a curriculum evening at J’s school yesterday. It was as I expected full of useless information but I also discovered some things that J is going to struggle with. I can’t get into all of our school issues right now, there’s far too many and instead of wasting my breath arguing with them constantly and then the school not listening we’ve decided to talk to our support worker with the ESCO team and then let her deal with the school……………………..You never know maybe eventually they’ll listen to another professional rather than the people who know J best!
Anyhow one of the things I discovered was that his class may be going on a little trip to the supermarket next door to the school! His teacher (whom I have major issues with!!) explained to myself and all of the other parents that had attended the evening, that all of the children love it, it’s a popular trip, they all love the shopping experience, yadda yadda yadda………………. Can you imagine anything worse for a child with sensory needs like J?!?!
Not only will he have to deal with the anxiety of being at school but he’s also going to have to “cope” with a supermarket trip too! Supermarkets are sensory hell for a child like J and he doesn’t “cope” brilliantly with them. Once he managed to work out a way of dealing with the lights and sounds in the supermarket, he’ll have to try to concentrate and listen on what his teacher is saying/instructing the class. Then there’s the other people in the supermarket, which in all honesty is J’s biggest issue with supermarkets. Some people (not to be rude) have a very strong smell, some wear strong perfume/aftershave, some may carry something in a bag that doesn’t have a strong smell but to someone who has an amplified sense of smell it can be overwhelming. And another reason we try to avoid supermarkets with J is when they are busy, (which they so often are), people can often accidentally brush past you, however this can feel very different to a person with sensory needs. J is a child who likes to touch things, likes deep pressure, has a high pain threshold and often doesn’t notice when he bumps himself, however if someone brushes past him, that kind of touch can and has completely freaked him out, the result of which has been a sensory meltdown. I worry not only how he is going to deal with the trip but also how will the school/teacher who doesn’t have a clue about J or ASDs, deal with J if he should have a sensory meltdown and how would the rest of his class react.
I’m sure the trip is lots of fun for the majority of the children in the class but the school need to understand that not all children will and need to be prepared for what could happen, whether they “believe” it or not they have a child on the spectrum in their school who has sensory needs that need to be dealt with and supported!
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Posted in anxiety, Asperger's Syndrome, Autism, behaviour, children, coping with change, days out, family, feelings, friends, fun, health, holidays, life, memories, parenting, school, special needs, special occasions, struggles, support, The Seadside, this year, thoughts, time, travel, UK, tagged a photo a day for july, Asperger's Syndrome, Autism, children, Days Out, Family, Feelings, Fun, health, life, parenting, school, special needs, Summer, support on September 18, 2012 |
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It’s been a while since I posted. It’s been a long summer of highs and lows and we’ve been very busy.
At the start of the Summer holidays I had surgery on my right hand, nothing serious, I have Carpal Tunnel in both hands and so had surgery to relieve it. This meant I was unable to use my right hand for 3 weeks and then had to slowly regain use of it, It’s still quite painful around the area now but the scar is only just visible. It’s been hard work just doing some basic things (such as washing and dressing), and I’ve been really surprised at how much I rely on the use of my hands.
We renewed our Australian visas during the Summer. We discovered that they had just expired and so spoke to a very helpful person at Australia House who informed us that we could apply for a Resident Return Visa, which ofcourse we did. Our visas are valid for another 5 years, we were gutted to leave Australia in January and so by renewing our visas we might be able to return at some point over the next 5 years.
We opted for several days out over the Summer rather than a short holiday. J and I had a couple of days out with my wonderful friend Supersingle mum and her girls (one of which is J’s best (and only) friend here in England). We went to Wickstead Park, which is a small family fun/theme park and also went to the Yorkshire Wildlife Park. J enjoyed both days although was a little disappointed with the wildlife park. In his opinion there wasn’t enough animal interaction, I guess Australia Zoo is difficult to live up to.
We also had a few family days out, just my Hubby, J and I. We took J to Duxford Imperial War Museum, Cadbury World and ofcourse to the Seaside. He had great fun, in fact he had so much fun all trips were meltdown free!!! He loved looking at everything at Duxford and going to the Sealife centre whilst at the seaside but he was especially impressed with the cups of melted chocolate that he got to sample at Cadbury World. And ofcourse we’ve had numerous trips to feed the ducks!
Our housing situation hasn’t gotten any better over the Summer either. We applied to our local council for housing, ticking all the boxes for Housing Associations etc (as most homes are now with Housing Associations) and so far we have been offered 2 retirement bungalows. Neither were suitable for a family let alone a family with a child that has J’s needs and were both just about big enough for a retired couple, however due to us refusing them our local council have put our housing application on hold for 6 months. Therefore we are stuck living in a house that we don’t really want to be in but it was the only house available to rent when we first arrived back in England. (It’s very hard to rent a house here when you’re previous landlord and references are in a different country!)
And after having a fairly good and relaxed Summer, (other than the housing situation and the surgery), J went back to school 2 weeks ago. He’s already had a week off sick and although he didn’t like feeling so full of cold and coughing, he didn’t mind being off school and was gutted to go back yesterday. Things have already gone from bad to worse since going back and J declared as soon as he exited the school grounds that he’s ”had a horrid day!” However then shutdown and couldn’t tell us why! To be honest I have given up almost all hope of communication between the school and ourselves ever working and it feels like they simply don’t want to help/support and that maybe it’s just too much trouble for them. Our ESCO support worker is currently on holiday and we don’t have our next meeting with her, the school and other professionals until next month. We also don’t have our next appointment with the community Paediatrician until next month either and so until then we all just have to bide our time and just try our best to make it through each day. To be honest the nights are becoming harder than the days at the minute, as well as the usual fun and games at bedtimes, J has started to have Night Terrors. He’s been waking up between 3 and 7 times a night, screaming, shouting, panicking, violently shaking, rambling and (it looks like) trying to get something off him. Ofcourse by morning despite us all being a little more tired than usual he has no knowledge of any of his “awakenings”. Not sure what’s suddenly caused them or how to deal with them either but I’m sure we’ll work something out soon.
So that’s it, obviously there’s been lots of other “stuff” but this has been our Summer of highs and lows. As we make our way through Autumn we’re looking forward to trying to work our way through “stuff”, work our way towards Christmas (not too long now!!) and getting out of our rut.
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Posted in children, emotions, family, love, parenting, photo a day for july, smile, tagged #photoadayjuly, children, Family, life, love, parenting on July 20, 2012 |
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The most beautiful eyes in the world……
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Posted in Asperger's Syndrome, children, obsessions, parenting, photo a day for july, tagged #photoadayjuly, a photo a day for july, Asperger's Syndrome, Fun, life, parenting, smile on July 18, 2012 |
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J tells me he’s not a Thomas fan anymore because he’s for babies……………………………..
So he absolutely, definitely doesn’t like Thomas anymore………………this just happens to be his favourite plate and he can’t change that even if he doesn’t lie him anymore! LOL
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Posted in Asperger's Syndrome, Autism, children, emotions, feelings, free things, fun, happy, life, love, Me, memories, parenting, photo a day for july, photography, pictures, smile, special needs, special occasions, tagged a photo a day for july, Asperger's Syndrome, Autism, children, Family, Feelings, Fun, life, love, me, parenting, photography, smile, special needs, special occasions on July 11, 2012 |
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As my heart swells with pride, happiness and love I can’t think of a better day to share this with you…………
J says I love you everyday, it’s part of his routine at bedtime and when on the rare occasion that I manage to
escape go out, (usually to the supermarket), on my own, but it’s rarely said with any feeling behind it. I know that J loves me, he doesn’t have to say it because the little things he does everyday show me ………………. but this little note along accompanied by a hug *sigh* ……………..words can say a million things. xx
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Posted in parenting, health, children, anxiety, coping with change, the future, challenging behaviour, school, time, life, Asperger's Syndrome, Autism, feelings, behaviour, special needs, teach, UK, people, understanding, emotions, this year, struggles, thoughts, tagged Family, challenging behaviour, parenting, me, school, support, children, health, Asperger's Syndrome, Autism, The Future, life, Feelings, special needs on July 6, 2012 |
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Yesterday I was filled with hope……………… Hope that things couldn’t get any worse right? I mean, we’ve had a pretty tough 18 months but the last 6 months things have gone from bad to worse.
We were forced to come back to the UK, there was nothing else we could do (although looking back now I kinda wish we’d pitched a tent in a friend’s backyard and stuck it out n Oz!). Relationships have changed with family and friends, not just because we’d been away for almost 2 years but also because some don’t know and can’t “deal” with J’s behaviour and I just can’t be bothered to deal with them. That might sound harsh but I’m being honest, we’ve got alot going on at the moment which has and is causing alot of stress and I don’t have the energy to deal with those people. We have housing issues which I won’t get into right now but they are causing us alot of stress right now. We’ve had various tests done regarding our recurrent miscarriages and have been told that we may be referred to a specialist in London. Hubby is still seeing specialists regarding his back and I don’t think I could explain how desperate he is to get it fixed and to get back to work. I’m seeing a surgeon this month due to my Carpal Tunnel. We’re still waiting to see the Peadiatrician in order to get J’s all important UK diagnosis, cause obviously all the specialists he saw in Oz didn’t know what they were talking about and we’ve just wasted.
However the biggest cause of stress this year has been school! Ok so J has always had school issues and I’m pretty sure he’ll always have issues with school but this year (and he’s only been there for 4 months!) has made last years school related issues look not so bad! He’s not wanted to go, (I know nothing new there right?), he’s become so anxious about school that he worried himself sick and so had to have the last day of last term off because he simply couldn’t cope! He’s both expressed his anxieties with negative (and sometimes violent) behaviour and has completely shutdown. It takes almost 2 hrs each and every school night to convince him to get into bed due to his anxieties about school the next morning. The school really doesn’t understand Autism and in all fairness we knew this when we chose it but they did seem like they wanted to help and said all the right things etc……… ofcourse not much of those things have happened *sigh* His current teacher really doesn’t understand Autism or J, she and a TA have attended a course about Autism but neither seem to have gotten much out of it, they say they never see any ASD or anxiety behaviours at school, so obviously they don’t see him flapping, constantly bouncing, the literal thinking, the chewing of gaping holes in his mouth, the dirty issues he has or the lost look in his eyes. And his TA has even said to me “To be honest I don’t treat him any different, I don’t make any allowances, I don’t see the point!”……… yep those were her actual words!!!
But yesterday we met what will be J’s teacher from September. It was awful, she left us feeling that not only does she not believe in ASD but she also doesn’t want to! Some of her comments included “All parents find it hard the first time round” (she actually said this one twice) and ofcourse the comment that all parents hate “All children do that, it’s normal for children his age!” She actually made his current teacher look like she understood and was supportive!! It was so bad that I wanted to scream when we left and very nearly cried. So now we’re stuck, we can’t simply change school due to our housing situation (long story) but we have serious concerns about sending him back to his current school in September with that teacher!
Just gotta hope we can sort things out over the Summer holidays I guess………..and if we can’t, who knows what we’re going to do
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